Upcoming Events
Disclaimer: Connective Strength will not be recording or live-streaming any local presentations. However, notes and handouts from the meetings will be made available for distribution.
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Authentic or Awkward? A Discussion on EDS & Disability Representation in Media
Join us for a thought-provoking discussion on the representation of Ehlers-Danlos Syndrome (EDS) and disabilities in books and social media!
Is all representation good? Does EDS get portrayed accurately? What do we wish had been done differently, and what was done well? We'll dive into how disabilities are depicted in popular media, including Rebecca Yarros' work, Fourth Wing, which features diverse representation—from EDS to deafness, limb loss, and LGBTQ+ characters.
Come share your thoughts, experiences, and what you’d love to see in future stories! Let's explore the power of representation together.
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Virtual Patient Support Meeting
Join us for a virtual patient support meeting!
Meeting ID
Edit
Phone Numbers
(US)+1 402-647-0237
PIN: 404 747 412#
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Kirkland Support Meeting
Please note that the doors to the Tan building are locked on the weekends. Use the Central entrance, go to the first floor, and take the tunnel across to the Tan building.
Please join us for a support meeting!
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Caregiver Virtual Support Meeting
Join us for our monthly virtual caregiver support meeting!
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Bret Swigard - Innova Physical Therapy
Please note that the doors to the Tan building are locked on the weekends. Use the Central entrance, go to the first floor, and take the tunnel across to the Tan building.
Please join us for a presentation by Bret Swigard from Innova PT.
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The Graceful Clinic
Graceful Clinic Applications Are Now Open! The Graceful Clinic will take place on May 17th, 2025 in Seattle, WA (Westlake area).
Connective Strength is thrilled to announce that applications for the Graceful Clinic are officially open!
This is your opportunity to receive a free comprehensive assessment and expert recommendations from an incredible lineup of compassionate and knowledgeable providers, including:
Dr. Matthew Oseto (Ericson Hand Center)
Hands for Living
Dr. Virtaj Singh (Puget Sound Spine and Sports Medicine)
Dr. Erik Armitano (Complex Autonomic Center)
Gillian Ehrlich, DNP (NeuroVeda)
Erin Kinneen (RET PT)
And more amazing providers dedicated to serving our community!
The Graceful Clinic is here to help guide you on your healthcare journey with thoughtful insights and tailored recommendations—without providing direct treatment—so you can take the next steps with confidence.
Spots are limited, so apply soon!
To apply and learn more about eligibility, visit our website at https://www.connectivestrength.org/graceful-clinic
Questions? Reach out to us at Questions@ConnectiveStrength.Org
We can’t wait to walk alongside you on this journey to better health and self-advocacy!
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Lower Extremity Nerve Compression in Hypermobile and Ehlers-Danlos Syndrome (EDS) Patients
Please note that the doors to the Tan building are locked on the weekends. Use the Central entrance, go to the first floor, and take the tunnel across to the Tan building.
Join us this Sunday at 1 PM for a special presentation by Dr. Matthew Oseto on Lower Extremity Nerve Compression in Hypermobile and Ehlers-Danlos Syndrome (EDS) Patients. Dr. Oseto will explore how "soft nerves" and joint instability contribute to nerve compression, leading to pain, weakness, and falls. Learn practical strategies for managing symptoms through posture, movement, and conservative treatments, as well as when surgical intervention may be necessary. This talk is essential for anyone navigating EDS-related nerve issues—don't miss it!
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Heart-to-Heart: Love, Boundaries, and Connection
Join us for a meaningful and creative gathering where we’ll blend art and conversation. Start by making personalized Valentine’s cards to celebrate self-love, friendships, or a special someone. Then, participate in an open and supportive discussion covering essential topics like sex, consent, communication, and sexual health, tailored to the unique challenges of living with chronic illness.
We’re thrilled to have Tina Linares, LMHC, a Marriage and Family Therapy specialist and fellow chronic illness warrior, facilitating the discussion. Tina brings both professional expertise and personal experience to create a safe space where we can explore healthy relationships, navigate boundaries, and prioritize self-care in all aspects of love and connection. Let’s share, learn, and empower one another!
Please note Connective Strength events are intended for ages 16+ unless otherwise noted.
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Virtual Patient Support Meeting
Join us for a virtual patient support meeting!
Meeting ID
Edit
Phone Numbers
(US)+1 256-548-4230
PIN: 186 580 496#
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Caregiver Virtual Support Meeting
Join us for our monthly virtual caregiver support meeting!
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Decoupaged Oyster Shells Workshop
Please note that the doors to the Tan building are locked on the weekends. Use the Central entrance, go to the first floor, and take the tunnel across to the Tan building.
Join us for a creative and relaxing afternoon as the talented Katy leads us through the art of decoupaging oyster shells! Whether you’re a crafting pro or trying something new, this workshop is the perfect way to unwind and create something beautiful.
✨ What’s Included:
Step-by-step guidance from Katy
All materials needed to design your own stunning oyster shell creations
Tips and tricks to personalize your pieces and make them truly unique
A fun and supportive environment to connect with others!
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Therafirm Ordering Event
Please note that the doors to the Tan building are locked on the weekends. Use the Central entrance, go to the first floor, and take the tunnel across to the Tan building.
A Therafirm representative will be present with samples and able to answer questions. Connective Strength has secured exclusive pricing (significant discounts) to help the local EDS/HSD community. Please join us to order.
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Virtual Patient Support Meeting
Join us for a virtual support meeting!
Meeting ID
Edit
Phone Numbers
(US)+1 914-893-5808
PIN: 895 412 455#
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Creative Hydration: Paint and Electrolytes
Join Connective Strength led by the talented Giusiana for a unique and energizing twist on the classic paint and sip experience! Instead of wine, we’ll be sipping on delicious electrolyte drinks while unleashing our creativity on canvas.
✨ What to Expect:
A guided painting session, perfect for all skill levels
Refreshing electrolyte beverages to keep you hydrated and energized
A supportive, fun atmosphere designed with chronic illness warriors in mind
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Holiday Party!
Kirkland, WA - EvergreenHealth (Room Tan 100). Tan building doors will be locked so please enter from central entrance, go down to main floor, and take the tunnel across to Tan building.
Join us for the Connective Strength Holiday Party! 🎄❄️ Enjoy a festive afternoon making snow globes, playing games, and indulging in delicious holiday treats. It’s the perfect chance to connect, laugh, and celebrate the season together. Bring your holiday spirit and let’s make magical memories! 🎁✨
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Support Meeting!
Kirkland, WA - EvergreenHealth (Room Tan 100). Tan building doors will be locked so please enter from central entrance, go down to main floor, and take the tunnel across to Tan building.
Join us for a relaxed and productive gathering! Get fitted for compression socks and enjoy a game-filled afternoon with a variety of board games. Whether you're here to find the perfect socks or simply unwind and connect, there's something for everyone. Don't miss this chance to take care of yourself and have some fun. Bring a friend, your questions about compression wear, and get ready to roll the dice on a great afternoon!
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Applying for Disability by Russell & Hill Attorneys at Law!
Marysville Library (6120 Grove St, Marysville, WA 98270)
We are pleased to announce an upcoming informational meeting on Applying for Disability, hosted by Russell & Hill Attorneys at Law. This session will provide an in-depth look at the process of applying for disability benefits, including essential steps, common challenges, and tips for increasing your chances of success.
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Virtual Caregiver Support Meeting
Join us for a virtual Caregiver support meeting!
Meeting ID
Phone Numbers
(US) +1 650-530-3365
PIN: 428 261 596#
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Winter Warm-Up: Share Your Cozy Favorites & Wish Lists
Kirkland, WA - EvergreenHealth (Room Tan 100)
Join us for a cozy winter gathering as we exchange ideas on the best winter essentials and must-haves for your winter wish lists! Whether it's your favorite winter gear, a comforting drink, or the perfect gift for staying warm, we’d love to hear what keeps you cozy during the chilly months.
✨ Special Guest: Soovu Heating Device ✨
We’re excited to announce that Soovu will be at the meeting to showcase their incredible heating device! You’ll have the chance to learn about it and even try it for yourself, discovering a new way to stay warm and relieve aches this winter.
Bring your favorite winter finds, enjoy great company, and get inspired for your own winter wishlist. We can’t wait to see you there! ❄️🎁
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Beautiful Autism - EDS and Autism
Marysville Library (6120 Grove St, Marysville, WA 98270)
We invite you to an enlightening presentation by Beautiful Autism (Rina Brown, MA, LMFTA, Certified AutPlay Provider and Cole Chang, MSOT, OTR/L, Director of Habilitative Therapy) on the intriguing correlation between Ehlers-Danlos Syndromes (EDS) and Autism Spectrum Disorders. This session is designed for those affected by either condition, healthcare professionals, and caregivers interested in understanding the connection and effective coping strategies.
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Virtual Support Meeting
Join us for a virtual support meeting!
Meeting ID
Phone Numbers
(US) +1 347-384-9707
PIN: 343 681 358#
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Connective Strength at APTI Conference
Connective Strength Board Members will be attending and tabling the APTI Conference.
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Virtual Caregiver Support Meeting
Join us for a virtual caregiver support meeting.
Meeting ID
Phone Numbers
(US) +1 413-659-6193
PIN: 690 692 916#
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Golden Harvest & Wellness Dance
Brightwater Center (Woodinville, WA)
Tickets: https://givebutter.com/GoldenHarvestDance24
You're invited to an enchanting evening at our Golden Harvest Formal Dance, a special event designed with inclusivity at its heart. This magical night is open to individuals of all abilities, providing a warm, welcoming environment where everyone can shine.
Dance the afternoon away, enjoy delicious refreshments, and make memories with friends new and old. We encourage you to bring a plus one—whether it's a spouse, friend, family member, or caregiver—to share in the joy and celebration.
Dress up, celebrate your uniqueness, and let’s create a night to remember together. All are welcome—because every dance is better with you in it!
Volunteers will be available to help with hair & makeup onsite if anyone needs assistance.
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Maximize Your Health Coverage: Learn How to Select and Utilize Your Health Insurance Benefits!
Marysville Library (6120 Grove St, Marysville, WA 98270)
Join us for an invaluable presentation designed to help you navigate the complexities of health insurance. This event is perfect for anyone looking to understand more about selecting the right health insurance plan and maximizing their benefits.
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Virtual Support Meeting
Connective Strength invites you to our next virtual support meeting, where you can find community, share experiences, and gain valuable insights.
Meeting ID
Phone Numbers
(US)
+1 774-404-2922
PIN: 918 337 447#
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Erin Kinneen (RET Redmond) - Self-Taping Techniques
RET Redmond (15600 Redmond Way #100, Redmond, WA 98052)
Join us for an engaging session on Self-Taping Techniques led by Erin Kinneen of RET Redmond. This event is designed for individuals seeking effective methods to support their physical rehabilitation efforts, as well as for caregivers looking to assist in the recovery process.
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Preparing for Surgery: A Guide for Chronic Illness Patients
Marysville Library (6120 Grove St, Marysville, WA 98270)
Join us for an insightful presentation on “Preparing for Surgery: A Guide for Chronic Illness Patients.” This essential session will cover crucial steps to ensure a smooth surgical experience, from pre-operative planning and managing medications to post-operative care and recovery tips. Learn how to advocate for your unique needs and navigate the healthcare system with confidence. Don’t miss this opportunity to gain valuable knowledge and support for your surgical journey.
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Atlas Assistance Dogs - Jennifer Kolar
Marysville, WA - TBD
We are excited to invite you to an enlightening meeting about the incredible benefits of service dogs, presented by Jennifer Kolar from Atlas Assistance Dogs. This event is ideal for anyone interested in how service dogs can enhance the lives of individuals with various needs, as well as their caregivers.
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4th of July Parade!
Come support Connective Strength at the City of Kirkland’s 4th of July Parade!
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Dr. Komal Patil-Sisodia - Endocrinology
Kirkland, WA - Verne & Wells (11232 120th Ave NE #103, Kirkland, WA 98033).
We warmly invite you to our next support meeting featuring the distinguished Dr. Komal Patil-Sisodia, who will be delving into the crucial field of Endocrinology. This session is tailored for those dealing with hormonal health issues and their caregivers, offering both education and support.
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Bendy Brains and Joint Adventures: EDS Trivia and Friendship Bracelet Making!
Marysville Library (6120 Grove St, Marysville, WA 98270)
Join us for a fantastic afternoon of fun and friendship at "Bendy Brains and Joint Adventures!" Test your Ehlers Danlos Syndrome (EDS) smarts with a lively trivia game, then unwind with some creative friendship bracelet making. It’s the perfect mix of brainy challenges and crafty relaxation!
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One Page Medical Summary Workshop
Verne & Wells (11232 120th Ave NE, Suite 103, Kirkland WA 98033)
Get ready to transform your medical history into a clear, concise masterpiece at our One Page Medical Summary Workshop! Come prepared to write, as we provide the template and guide you step by step. Don’t miss this chance to streamline your health story into a single, powerful page! Feel free to bring your laptop or utilize a paper copy.
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Caregiver Series Part Three
Marysville Library (6120 Grove St, Marysville, WA 98270)
We invite you to a transformative class on May 4th, dedicated to both caregivers and care receivers. This session is an opportunity for those who give and those who receive care to come together in a shared space of understanding and growth.
Whether you are a devoted parent, a loyal friend, a loving partner, or someone who stands in the caregiving role, this day is designed with you in mind. Feel free to come with your care receiver, or step into this environment on your own. Dive deep into the dynamics of your relationship through interactive discussions that leave no question unanswered and no topic off-limits.
This presentation will focus on often overlooked topics such as boundary setting, effective communication, and advocacy. Our goal is to empower each participant, transforming the caregiving experience into one that is as rewarding as it is essential.
Gear up for a session that promises not only to provide answers but also to empower everyone involved. We’re excited to see you there for a day of learning, sharing, and growth together!