Educational Handouts


Ehlers-Danlos Syndrome (EDS)
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Delve into Ehlers-Danlos Syndrome (EDS) with our concise handout.

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Medical Summary Worksheet (Fillable PDF)
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Description: Our Medical Summary Worksheet is a fillable PDF designed to help you organize and update your essential medical information. It is ideal for individuals with chronic conditions, ensuring you have all your critical details in one place.

Features:

  • Fillable PDF: Easily update or print for handwritten notes.

  • Comprehensive Sections: Includes medical history, allergies, medications, family history, surgeries, and provider information.

  • User-Friendly: Simple layout for quick data entry.

  • Portable: Keep a digital copy or print for appointments.

Benefits: Stay organized with all your medical details in one place, improve communication with your healthcare team, and enhance care through better understanding and coordination among providers.

Perfect For: Individuals with Ehlers-Danlos Syndrome (EDS) or any chronic condition, caregivers, and healthcare providers.

How to Use: Download the fillable PDF, open it with a PDF reader, enter your information, and save or print it for easy access.

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Postural Orthostatic Tachycardia Syndrome (POTS)
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Delve into Postural Orthostatic Tachycardia Syndrome (POTS) with our concise handout.

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Craniocervical Instability (CCI)
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Delve into Craniocervical Instability (CCI) with our concise handout.

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Mast Cell Activation Syndrome (MCAS)
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Delve into Mast Cell Activation Syndrome (MCAS) with our concise handout.

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Gastroparesis
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Delve into Gastroparesis with our concise handout.

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Thoracic Outlet Syndrome (TOS)
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Delve into Thoracic Outlet Syndrome (TOS) with our concise handout.

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Median Arcuate Ligament Syndrome (MALS)
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Delve into Median Arcuate Ligament Syndrome (MALS) with our concise handout.

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Complex Regional Pain Syndrome (CRPS)
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Delve into Complex Regional Pain Syndrome (CRPS) with our concise handout.

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Understanding Workplace Accommodations Booklet
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Author: Zoë Jorna-Jackson, MA-SSM

Connective Strength is proud to offer a free downloadable booklet, "Understanding Workplace Accommodations," designed to help individuals with disabilities, particularly those with Ehlers-Danlos Syndrome (EDS), navigate workplace accommodations effectively.

What You'll Learn

This booklet covers:

  • Americans with Disabilities Act (ADA): Understand the protections and rights provided under the ADA, focusing on workplace accommodations.

  • Employer Compliance: Learn about the obligations of employers to provide reasonable accommodations under Title I of the ADA.

  • Your Rights: Identify your rights as a qualified employee with a disability.

  • Reasonable Accommodations: Explore various modifications and adjustments that can help you perform your job effectively.

  • Requesting Accommodations: Practical steps to request accommodations and what to do if your request is denied.

  • Specific Condition Accommodations: Tailored advice for managing conditions like EDS and Postural Orthostatic Tachycardia Syndrome (POTS) in the workplace.

Who Should Download This Booklet?

This booklet is an invaluable resource for:

  • Individuals with Disabilities: Gain knowledge about your rights and how to advocate for yourself in the workplace.

  • Employers: Understand your responsibilities and how to create an inclusive work environment.

  • Healthcare Providers: Equip your patients with the necessary information to navigate workplace challenges.

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Navigating Health Insurance: A Guide for Chronic Illness Patients
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Author: Zoë Jorna-Jackson, MA-SSM

Connective Strength is offering a free downloadable booklet, "Navigating Health Insurance: A Guide for Chronic Illness Patients," designed to assist individuals with chronic conditions, particularly Ehlers-Danlos Syndrome (EDS), in understanding and navigating the complexities of health insurance.

What You'll Learn

This booklet provides guidance on:

  • Health Insurance Basics: Learn essential terms such as premiums, deductibles, copayments, coinsurance, and out-of-pocket maximums to better understand your coverage.

  • Choosing the Right Plan: Discover how to assess your healthcare needs, compare different types of health insurance plans (HMO, PPO, EPO, POS), and select the best one for managing chronic illnesses.

  • Maximizing Your Benefits: Tips on using your insurance plan effectively, including preventive care, regular check-ups, specialist care, and prescription management.

  • Financial Assistance: Explore additional support options like patient assistance programs, nonprofit organizations, and state and federal programs to help manage costs.

  • Staying Informed: Learn the importance of staying updated on insurance changes and how to utilize open enrollment to make necessary adjustments.

Who Should Download This Booklet?

This booklet is an essential resource for:

  • Individuals with Chronic Illnesses: Gain insights into choosing the right health insurance plan and making the most of your benefits.

  • Caregivers and Family Members: Understand the complexities of health insurance to better support your loved ones.

  • Healthcare Providers: Equip your patients with the knowledge they need to navigate their health insurance effectively.

  • HR Professionals: Ensure employees with chronic conditions have the resources and support they need to make informed decisions.

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