Our Organization
Connective Strength, as a registered 501(c)3 organization, focuses on supporting and empowering local patients with Ehlers-Danlos Syndrome (EDS). Our efforts aim to improve the quality of life for individuals with EDS and to build a knowledgeable and supportive community around them.
How we can help
Group Meetings
We hold up to thirty-six in-person group meetings to foster a strong support network. We offer a combination of support and educational meetings. These meetings are open to patients, their families, and providers.
Education Classes for Healthcare Providers
We offer in-person education classes that cover a range of topics related to EDS care. These sessions are aimed at enhancing the knowledge and skills of healthcare providers in managing EDS.
Awareness Events
Our events are open to patients, healthcare providers, and the general public. These events are designed to promote a broader understanding of EDS and encourage community engagement.
Educational Handouts
Informative handouts to improve understanding and management of EDS and related comorbidities. These materials serve as a valuable resource for patients, their families, and providers.